Join us for an authentic wartime era tea dance! Complete with swing band, singer, afternoon tea, raffle, best dressed competition!
Tickets are ONLY available via the below link.
Join us to raise some much needed funds at this wonderful charity event!
Nichola's story
In October 2009 my son Noah Joseph was tragically born sleeping.
In the truly horrific months/year(s) that followed I found The charity SANDS. They showed me that I wasn't alone and that there were so many people who I could talk to who knew exactly how I was feeling. They also made me aware of the harrowing facts and figures regarding stillbirth and neonatal death. Every day in the UK, 17 babies are stillborn or die shortly after birth. We believe that many of these deaths are preventable, and that this level of baby loss is completely unacceptable. Sands work hard to raise awareness of stillbirth and neonatal death, both with the general public and health professionals, but also with key decision makers around the UK.
They campaign for:
•Resources to be sufficiently allocated to better support those parents who suffer the loss of a baby.
•Improvements in maternity services to reduce the unnecessary loss of babies’ lives.
•A comprehensive review of all stillbirths and neonatal deaths so that we can learn what went wrong and change practice accordingly.
•Increased funding for research into the prevention of stillbirths and neonatal deaths.
In the truly horrific months/year(s) that followed I found The charity SANDS. They showed me that I wasn't alone and that there were so many people who I could talk to who knew exactly how I was feeling. They also made me aware of the harrowing facts and figures regarding stillbirth and neonatal death. Every day in the UK, 17 babies are stillborn or die shortly after birth. We believe that many of these deaths are preventable, and that this level of baby loss is completely unacceptable. Sands work hard to raise awareness of stillbirth and neonatal death, both with the general public and health professionals, but also with key decision makers around the UK.
They campaign for:
•Resources to be sufficiently allocated to better support those parents who suffer the loss of a baby.
•Improvements in maternity services to reduce the unnecessary loss of babies’ lives.
•A comprehensive review of all stillbirths and neonatal deaths so that we can learn what went wrong and change practice accordingly.
•Increased funding for research into the prevention of stillbirths and neonatal deaths.
Penny
My grandson was born with Type 1 Usher Syndrome before he was born it was completely unknown that either of his parents were carriers of Ushers. My grandson was born completely deaf which affected his balance so making sitting, standing and walking so much more challenging. It also affected his ability to understand his environment. He was luck enough to have surgery at one years old to have Cochlear implants fitted for both ears.
He is now an amazing four year old and with lots of input from professionals he development is equal to any child his age. The next challenge however is ahead of him as his vision will gradually deteriorate to what degree it is not known. Evidence shows that it will be significant. He will firstly lose his night vision and imagine how terrifying this will feel for a child who cannot see at night or hear because the cochlear implants are taken off to when sleeping. He will ultimately lose his day time vision as well.
Because of the limited number of people who have Usher syndrome, approximately 10,000 people in the UK, funding for research is very limited. Much is raised though charity events and personal donations. Please can you consider a small donation towards research that could change children’s lives and ultimately prevent Usher syndrome in the future.
He is now an amazing four year old and with lots of input from professionals he development is equal to any child his age. The next challenge however is ahead of him as his vision will gradually deteriorate to what degree it is not known. Evidence shows that it will be significant. He will firstly lose his night vision and imagine how terrifying this will feel for a child who cannot see at night or hear because the cochlear implants are taken off to when sleeping. He will ultimately lose his day time vision as well.
Because of the limited number of people who have Usher syndrome, approximately 10,000 people in the UK, funding for research is very limited. Much is raised though charity events and personal donations. Please can you consider a small donation towards research that could change children’s lives and ultimately prevent Usher syndrome in the future.
Please follow the link to purchase tickets!